This privacy notice applies only to the IU School of Medicine - Medical Genetics (http://smaregistry.iu.edu/) and explains our practices concerning the collection, use, and disclosure of visitor information. Visitor information collected by IU School of Medicine - Medical Genetics will be used only as outlined in this privacy notice.
Other units at the university may collect and use visitor information in different ways. Therefore, visitors to other university web sites should review the privacy notices for the particular sites they visit. IU School of Medicine - Medical Genetics is not responsible for the content of other web sites or for the privacy practices of web sites outside the scope of this notice.
Because Internet technologies continue to evolve rapidly, IU School of Medicine - Medical Genetics may make appropriate changes to this notice in the future. Any such changes will be consistent with our commitment to respecting visitor privacy, and will be clearly posted in a revised privacy notice.
When you view pages on our site, the web serverautomatically collects certain technical information from your computer and about your connection including:
Continued use of our web site indicates consent to the collection, use, and disclosure of this information as described in this notice.
This technical information is retained in detail for up to 365 days.
If you supply us with your postal/mailing address, you will only receive the information for which you provided us your address.
We do not share any aggregate, non-personally-identifiable information with other entities or organizations.
We do not share any personally-identifiable information with other entities or organizations, except when legally required to do so, at the request of governmental authorities conducting an investigation, to verify or enforce compliance with the policies governing our web site and applicable laws, or to protect against misuse or unauthorized use of our web site.
Except as described above, we will not share any information with any party for any reason.
Except as provided in the Disclosure of Information section below, we do not attempt to use the technical information discussed in this section to identify individual visitors.
Other than automatically collected technical information about your visit (described above, or cookies described below), we may ask you to provide information voluntarily, such as through forms or other manual input — in order to make products and services available to you, to maintain and manage our relationship with you, including providing associated services or to better understand and serve your needs. This information is generally retained as long as you continue to maintain a relationship with us. Your providing this information is wholly voluntary. However, not providing the requested information (or subsequently asking that the data be removed) may affect our ability to deliver the products or service for which the information is needed. Providing the requested information indicates your consent to the collection, use, and disclosure of this information as described in this notice. Information we may actively collect could include:
A cookie is a small data file that is written to your hard drive that contains information about your visit to a web page. If you prefer not to receive cookies, you may configure your browser to not to accept them at all, or to notify and require approval before accepting new cookies. Some web pages/sites may not function properly if the cookies are turned off, or you may have to provide the same information each time you visit those pages.
This site is not directed to children under 13 years of age, does not sell products or services intended for purchase by children, and does not knowingly collect or store any personal information, even in aggregate, about children under the age of 13. We encourage parents and teachers to be involved in children's Internet explorations. It is particularly important for parents to guide their children when they are asked to provide personal information online.
Our web site does not utilize any types of services provided by third parties.
In some cases, we will grant visitors the ability to update or correct inaccuracies in the information that we maintain.
Visitors may correct inaccuracies in:
Visitors can have this information corrected by:
Other than sharing your information with other appropriate university personnel and units to ensure the quality, functionality, and security of our web site, or manage your relationship with us, we will not disclose personally identifiable information about your use of the site except under the following circumstances:
Due to the rapidly evolving nature of information technologies, no transmission of data over the Internet can be guaranteed to be completely secure. While we are committed to protecting the privacy of our visitors, we cannot guarantee the security of any information that you transmit to University web sites, and you do so at your own risk. However, once we receive your information, we will use reasonable safeguards consistent with prevailing industry standards and commensurate with the sensitivity of the data being stored to maintain the security of that information on our systems.
In addition, we will comply with all applicable Federal, State and local laws regarding the privacy and security of visitor information.
We have appropriate security measures in place in our physical facilities to protect against the loss, misuse, or alteration of information that we have collected from you at our site.
When we transfer and receive certain types of sensitive information such as financial or health information, we redirect visitors to a secure server.
From time to time, we may use visitor information for new, unanticipated uses not previously disclosed in our privacy notice.
If you have questions or concerns about this policy, please contact via email at email@example.com.
If you feel that this site is not following its stated policy and communicating with the owner of this site does not resolve the matter, or if you have general questions or concerns about privacy or information technology policy at Indiana University, please contact the University Information Policy Office, 812-855-UIPO, firstname.lastname@example.org.
This project is supported by Cure SMA