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- Families of Spinal Muscular Atrophy
- Fight SMA
- Muscular Dystrophy Association
- Spinal Muscular Atrophy Foundation
- The Jennifer Trust (UK)
- Treat-NMD (EU)
Downloads
Consensus Statement for Standard of Care in Spinal Muscular Atrophy
Wang CH, Finkel RS, Bertini ES, Schroth M, Simonds A, Wong B, Aloysius A, Morrison L, Main M, Crawford T, Trela A and Participants of the International Conference on SMA Standard of Care, J Child Neurol 2007; 22; 1027. DOI: 10.1177/0883073807305788.
- This is the original consensus statement for standards of care in SMA written by participants of the International Conference on SMA Standard of Care. It was published in the Journal of Child Neurology. Available in English only.
A Family Guide to the Consensus Statement for Standard of Care in Spinal Muscular Atrophy
Prepared by SMA Advocates for families affected by SMA, 2007.
- This document is a Family Guide to the Consensus Statement for the Standard of Care in Spinal Muscular Atrophy and was prepared by SMA Advocates for families affected by SMA. This guide is meant to be a condensed and less technical version of the full Consensus Statement. The full text of the Consensus Statement can be found on this page under Consensus Statement for Standard of Care in Spinal Muscular Atrophy.
Diagnostic Testing and Care of New SMA Patients
Joint publication of Translational Research in Europe for the Assessment and Treatment of Neuromuscular Diseases (TREAT-NMD) and the International Coordinating Committee (ICC).
- This document outlines the current consensus for the diagnosis and care of new SMA patients. It is available in 8 languages:
