Information in this website is provided for both potential participants and potential researchers. If you have any questions about the Registry, please feel free to contact the Registry staff.
Note: There are a number of upcoming Phase 1 clinical trials and biomarker studies scheduled to begin within the next twelve months. To learn more about biomarkers, click here. For more information about the structure of clinical trials in the United States, click here. Both articles are also available, along with previous editions of our Bridges newsletter, through the Participant Portal and the Researcher Portal under the "Newsletters" link.
This project is supported by Families of SMA.
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